Alex had an incredible Thanksgiving. My whole family came up to visit for part of the weekend, and it was really nice to see everybody, but the real reward was when we tried a new trick with the hash in order to get Alex to be stable for a four-hour visit: we dissolved it into olive oil. Continue reading “Thanksgiving update, rapamune success maybe”
Ever since Alex stopped seeming comfortable with visits to our home, we’ve just taken to visiting him. But as much as we need to see him, we can’t see him as often as we have been. We’re down to twice a week now, and while I don’t like seeing him so little, I can tell I’m a lot less stressed out because of it. Trying for 3-4 visits a week was taking a lot out of me, I guess, especially since most of the in-home visits were so awful. Continue reading “Fewer visits means better visits?”
I don’t believe marijuana reform will happen in time to benefit Alex. Prop 19 was an amazing initiative that proved that the country is ready to take cannabis a whole lot more seriously, but without the “yes” votes this year, I don’t imagine the fight will go very far for a while. The U.S. government is already adding to the lies, Continue reading “For Alex, the fight is over”
Last Monday, Alex started on Rapamune finally. It’s a wonderful but horrible medication for Alex. In terms of risks and side-effects, it scares the hell out of me, but for Alex’s situation (TSC and autism), it’s one of the few pharmaceuticals that can do some amazing good for the kid. We’ve been wanting to try it a while, and the growth in his brain is enough to justify it finally — either we try this medication or we get started down the road of brain surgery. Continue reading “The new medication”
Well, we processed the harvest and ended up with a surprisingly small amount of hash. It’s enough to give Alex probably 100 doses, so I can’t really complain, but it was a lot less than I expected, considering how much bud and really good shake we started with. Turns out I probably made the hash incorrectly. Continue reading “The hash and the fat”
A lot has been going on lately and not much time to write. Alex’s mood has been very erratic, and we can’t really figure out how to explain it, so it’s just another mystery. He’s on allergy meds now, so we can’t blame seasonal allergies this time (though maybe he has extreme allergies, who knows). His list of medications is pretty long now — we requested a print-out of it just Sunday — and we don’t really like the idea, but we’re considering trying Haldol again. We’re also going to have to push hard on Rapamycin when we see his neurologist in a couple weeks or so. We hate all the medicating, but there doesn’t seem to be any option for getting hash. We will keep giving it as we can, but until we can get real legal help, we’re just stuck. Continue reading “Mid-September Update”
We hadn’t been able to give Alex hash (we can’t do it on the premises of the facility, so it’s a tricky problem when he’s too angry to take anywhere), and his mood was improving. We’re not the kind of people to say it’s a miracle cure-all medicine, so naturally we had to consider the possibility that the cannabis was in fact making Alex agitated somehow, even though past experience showed otherwise. People change, reactions to different drugs change, etc. But after this past week, we saw some things that convinced us it wasn’t the hash. Continue reading “At least we know the hash isn’t hurting him….”
It’s been a while since I had much to say about Alex’s situation. He’s been his usual self, on and off rage issues, and it’s just been hard to want to write much when his situation is only a little better than when he was at home. Continue reading “Alex updates – August 17th”
I just want to add this to my list of information, because too many people still seem to think that if prop 19 passes, they’ll lose their medical marijuana protection. This will not happen. As I recently added to my last post, please read Russ Belville’s analysis of prop 19, and pay special attention to the exceptions noted. The prop 215 protection for medical use remains. If you’re under 21 and need MMJ, you’re still okay. If you’re a cancer patient and need to grow more than a 5×5 area (assuming 215 allowed this), then you are absolutely still safe.
Please stop spreading rumors without actually taking the time to analyze the text!
(UPDATE! Russ of NORML does a much better job of explaining how prop 19 rocks)
I’ve been reading a lot about prop 19, and how various people think it needs to wait another two years to get some refinements. Generally speaking, it’s too strict, and takes away more freedom than it gives. Some of the anti-prop-19 propaganda is below — some is fact, some is exaggerated, and some (I believe) is completely made up: Continue reading “Why prop 19 must not fail”