Saturday visit – mixed results

A bit ago I spoke with my grower (Alex’s grower, technically — but I am the caregiver so that has to count for something), and he mentioned eating hash usually requires a pretty large amount for most people he’s dealt with.

On Saturday, we tried out a whole lot more hash than usual. A typical amount is about a tenth of a gram. I gave Alex .15g, waited 30 minutes, and gave another .15g, for a total of three times our normal dose. He had arrived at 10am pretty upset, but had calmed down a great deal by 11 or 11:30. He went from needing direct, constant protection to playing a bit on his own. Continue reading “Saturday visit – mixed results”

Another bad day

Today was definitely a lot different than last weekend. We had to watch Alex beating himself up, bite, scream, and generally have a rough time. And every time it seemed we’d figured out what he needed to be happy, it turned out to be a short-term solution. The shower helped… for about half an hour. Food helped for a few minutes. Water helped for a few minutes.

To be fair, we got about a 50/50 mix of happy and sad today, but we ended with Alex very unhappy. Ending on a bad note means he probably continued to be unhappy after we left, and the fact that he started out so happy makes it feel as though we failed him in some way we just couldn’t manage to figure out. Continue reading “Another bad day”


We made a mistake and told too many people about a situation we meant to keep a bit more “secret” for a while. It’s probably not a big deal, but we should have mentioned to those people not to go crazy until we had more information. If you don’t know what I’m talking about, ignore this. If you do, shame on you for not reading our minds! Seriously, though, we didn’t think to tell you not to share our story, and it’s amazing the amount of support we’re seeing. I know it’s become a cliche, but we cannot express how much we appreciate your support. Continue reading “Oops”

Thanksgiving update, rapamune success maybe

Alex had an incredible Thanksgiving. My whole family came up to visit for part of the weekend, and it was really nice to see everybody, but the real reward was when we tried a new trick with the hash in order to get Alex to be stable for a four-hour visit: we dissolved it into olive oil. Continue reading “Thanksgiving update, rapamune success maybe”

The hash and the fat

Well, we processed the harvest and ended up with a surprisingly small amount of hash. It’s enough to give Alex probably 100 doses, so I can’t really complain, but it was a lot less than I expected, considering how much bud and really good shake we started with. Turns out I probably made the hash incorrectly. Continue reading “The hash and the fat”

Mid-September Update

A lot has been going on lately and not much time to write. Alex’s mood has been very erratic, and we can’t really figure out how to explain it, so it’s just another mystery. He’s on allergy meds now, so we can’t blame seasonal allergies this time (though maybe he has extreme allergies, who knows). His list of medications is pretty long now — we requested a print-out of it just Sunday — and we don’t really like the idea, but we’re considering trying Haldol again. We’re also going to have to push hard on Rapamycin when we see his neurologist in a couple weeks or so. We hate all the medicating, but there doesn’t seem to be any option for getting hash. We will keep giving it as we can, but until we can get real legal help, we’re just stuck. Continue reading “Mid-September Update”

At least we know the hash isn’t hurting him….

We hadn’t been able to give Alex hash (we can’t do it on the premises of the facility, so it’s a tricky problem when he’s too angry to take anywhere), and his mood was improving. We’re not the kind of people to say it’s a miracle cure-all medicine, so naturally we had to consider the possibility that the cannabis was in fact making Alex agitated somehow, even though past experience showed otherwise. People change, reactions to different drugs change, etc. But after this past week, we saw some things that convinced us it wasn’t the hash. Continue reading “At least we know the hash isn’t hurting him….”

Updates – June 19th

This was a wonderful week. I’m getting more settled into my job, I’ve got my computer set up so I can keep in touch with everybody supporting us, and more importantly, all four visits with Alex went really well. I gave him hash (off-site, mind you — we aren’t allowed to administer ourselves on their property) each visit, and I am hoping that’s helping take off the edge, even though each dose is fairly small. Continue reading “Updates – June 19th”