Looks like we’re in for another rough patch

Alex’s mood has taken a major turn for the worse, as I mentioned a couple weeks ago, but now it’s gotten downright awful. The behaviors we’ve seen in the past three or four visits might be the worst since we placed him in his first home over two and a half years ago. Nothing consoles him, nothing comforts him, and nothing calms him down. I fully believe a regular dose of cannabis in his system would give him an overall better life, but I have to wonder if there’s anything at all that could help him when he gets this bad. Continue reading “Looks like we’re in for another rough patch”

Mid-September Update

A lot has been going on lately and not much time to write. Alex’s mood has been very erratic, and we can’t really figure out how to explain it, so it’s just another mystery. He’s on allergy meds now, so we can’t blame seasonal allergies this time (though maybe he has extreme allergies, who knows). His list of medications is pretty long now — we requested a print-out of it just Sunday — and we don’t really like the idea, but we’re considering trying Haldol again. We’re also going to have to push hard on Rapamycin when we see his neurologist in a couple weeks or so. We hate all the medicating, but there doesn’t seem to be any option for getting hash. We will keep giving it as we can, but until we can get real legal help, we’re just stuck. Continue reading “Mid-September Update”

New job and stuff

Started the new job on Monday, visited Alex Tuesday, and am generally very busy. Not a lot of time to update here or respond to emails. The good news is that Alex has been able to go without wearing his helmet for a long time now (probably a full week by now, I think). We’re hoping his med combinations can actually keep him relatively stable for a while. Continue reading “New job and stuff”