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- Why are we doing this? What do we want? Read our Agenda.
Who is Alex?Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.
Category Archives: Alex
There’s not been a lot to say lately, hence the lack of posts. I just don’t have the time or energy to keep up here. I’ll be shutting down commenting today, though the contact form may remain up for a … Continue reading
Statement by Karen and Jeremy about misuse of Alex’s picture: Alex’s story, and in particular the picture Jim Carrey used is not about vaccine safety. It is a story of extreme autism and self-injurious behaviors. It is a story about … Continue reading
We got Alex’s OMMP card recently, and we now have a donor (TJ’s Organic Gardens), so we’re able to give Alex a blend of high-CBD and high-THC oils, mixed to whatever ratio we think will work best. We’re not sure … Continue reading
I touched a little on it recently, but Alex’s new home’s upper management seem to be significantly more concerned about doing what’s best for Alex than his last home. This is just one of many reasons I’m thinking this year … Continue reading
[ I apologize for the lack of contact, I'm actually at work right now delaying my "clock-in" time, so to speak, in order to write something up - it's been a crazy, crazy couple of years ] Initially, Alex went … Continue reading
This is a bit delayed, but we finally got Alex out of KKI and back to Oregon! He won’t be getting back on OMMP any time soon as his new home is over 90 minutes away from us, making daily … Continue reading
Well, after a lot of fighting we got Alex to the Kennedy Krieger Institute. It was a ridiculous battle, and shame on Providence for trying to deny somebody as obviously in need as Alex. Their initial denial was flimsy at … Continue reading
I’d like to say first and foremost that we wanted to thank all of our supporters. in the past few months, even with very few updates from us, we have received tons of emails and Facebook messages supporting us and … Continue reading
After stating the blog would go on, I haven’t touched it. Partly I don’t feel like putting up more because I’m satisfied that Alex’s story was able to really be told. Partly I feel like the updates aren’t helpful since … Continue reading
First, since surgery, Alex has been doing really well. This should not be the case from everything we’ve learned about the SEGA (the growth in his brain they removed), but we’re not going to complain. We’ve been told by doctors … Continue reading