Follow us on Facebook
- Why are we doing this? What do we want? Read our Agenda.
Who is Alex?Alex suffers from Tuberous Sclerosis, seizures, Autism, and very severe self-injurious behaviors. He hurts himself so badly that he can't live with us anymore. After the heartbreak of placing him outside the home, now we're having to fight an uphill battle for the medicine that may actually help him.
Tag Archives: visit
Alex had pinkeye on Sunday, the day he was going to be driven up for a visit. This marks the first time since June of 2010 (the month I moved up to live near him) that more than a week … Continue reading
Today we had Alex driven up to our house for his visit, and to meet his new baby sister. His mood was all over the place, and we had a few really great moments, but overall the visit was terrible.
I’ve recently gotten approval at my job to work four ten-hour days rather than five eight-hour days. This allows me to visit Alex once on the weekend, and another time mid-week. It’s really nice to not have to feel like … Continue reading
We saw Alex this weekend for over three hours, and it was a pretty good visit overall. He had quite a few moments of rage, but none that lasted longer than a few minutes, and none that got as intense … Continue reading
I was hoping to make a real effort to get updates with video, but I’m finding this is a lot more pain than I expected. The amount of video we have is enormous just from the past month, so I’ve … Continue reading
It’s been about a year and a half since we made the decision to have Alex placed outside the home, and still he has these horrible periods of sibbing (to “sib” means to engage in self-injurious behaviors). We took some … Continue reading
As we were camping over the weekend, we visited Alex on Monday this week, and it was a pretty awful visit. Within about two hours we had to leave due to how much Alex was hurting himself. Though sad, this … Continue reading
Recently, our visits have taken a slight turn for the better. On Saturday the 2nd, Alex was driven to our home and had a pretty awful day, but on the 3rd we visited him with his cousin and grandmother, and … Continue reading
Saturday was a pretty bad visit again. Alex was driven to our home and we had him picked up just two hours after his arrival. It wasn’t as bad as last weekend in terms of general self-abuse, but there wasn’t … Continue reading