It’s been suggested we keep the blog going as well as the facebook page, since a lot of people won’t follow the Facebook stuff, so I’m going to try and put up the longer updates and such here. Continue reading “Alex post-surgery updates… and more!”
The interview is definitely going to air. We’ve even been contacted by somebody who saw a trailer for the interview. It was suggested that we put Alex’s story up on Facebook since it’s more visible there (and easier for us to maintain, less likely to get overwhelmed by traffic surges, etc). We’ve only started today, but Alex’s story is now an official Facebook page. Continue reading “Moving to Facebook… maybe….”
We just finished a brief interview with a local TV station. It was grueling, but mostly because I hate remembering the day we had to tear our family apart. And, of course, that pain is what makes our story so important, so there’s no reason the reporter wouldn’t want to talk about it. Continue reading “It’s interview day again”
In the past month I’ve missed something like 6 days due to various medical situations. First my father got incredibly sick and I actually expected I was going to be attending a funeral. Then my wife, kids, and I all got some awful stomach bug. Now we’re almost healthy, but our youngest has a cold.
So naturally, Alex’s brain surgery and OMMP situation have to go to hell next. Continue reading “Boy, when it rains…”
There’s still not a lot to say. Alex hasn’t been doing too great lately, and even when he’s in a good mood he has to be wrapped up in a blanket or something that can similarly restrict his hands, otherwise he quickly enters a state of intense agitation which escalates into severe self-injury. Continue reading “Losing motivation”
Alex’s mood has taken a major turn for the worse, as I mentioned a couple weeks ago, but now it’s gotten downright awful. The behaviors we’ve seen in the past three or four visits might be the worst since we placed him in his first home over two and a half years ago. Nothing consoles him, nothing comforts him, and nothing calms him down. I fully believe a regular dose of cannabis in his system would give him an overall better life, but I have to wonder if there’s anything at all that could help him when he gets this bad. Continue reading “Looks like we’re in for another rough patch”
I write to tell about what has happened in Alex’s life, or to mention exciting activism-related information. But Alex’s status hasn’t changed in such a long time that there hasn’t been much to say other than describing the up-and-down nature of our visits or talking about the (still several months off) vote on Measure 80. With the full-time job, 2-3 Alex visits a week, and our family situation in general, it’s tough to feel like writing after a long day.
Writing becomes even harder when Alex’s mood takes a turn for the worse. Continue reading “Another month of quiet”
Alex is up and down, as usual, though he had been doing really well from mid-June until about last week. We’re starting to get settled in, and finding time to visit him at least twice a week. Hopefully we can get that up to three times a week on average. Unfortunately, with everything still pretty busy, I have been forgetting to give him his tincture, and I suspect that’s part of why the last few visits have ended badly. When we were further from him, but remembering the tincture every visit, it seemed to be doing a great job of turning around bad visits within thirty minutes or so. Continue reading “Some Alex updates finally”
It’s been a long time since an update, primarily because of the move. We’re now about a twenty-minute drive from Alex, so we can see him throughout the week instead of only on weekends. Of course with all the craziness of the move, we still haven’t seen him as much as I’d like, but that should change as we settle in and get more of a routine going.
Not a lot else to say – too much stuff to still take care of today. Here’s hoping things can slow down in the next week or two….