August 19th visit made up for it

Alex had a horrible visit yesterday evening. We wanted to repeat the Tuesday happiness and get some more pictures and video, but whatever fleeting happiness my little boy enjoyed on Tuesday was completely gone yesterday. We couldn’t even get him into the car to try to take him to a playground. He was hitting himself, screaming, and only for about five minutes did he smile any. Continue reading “August 19th visit made up for it”

Alex updates – June 13th

This week was all over the place. As I mentioned last time, I started my new job and have been able to visit Alex a bit. Unfortunately, his Thursday and Saturday weren’t nearly as good as Tuesday. He was hurting himself both days, and needed his helmet again. I brought him a burger yesterday and he barely touched it – this was a key part of prior visits, as he loved the burgers and we were able to count on making him a bit happier by offering him a little treat. Continue reading “Alex updates – June 13th”