Addendum – March 2011

Well, today we had Alex over for a visit to our home, and I have to say it was amazing. It makes up for all the difficulties we’ve seen this month. He was happy, playful, talkative, and very attentive and focused. We successfully gave him the hash this visit, but from the staff caring for him it sounds like he’s actually been like this for a few days now.

As much as I’d like to see prohibition die, I’d give up the entire cause if Alex is getting better through some other means. I really hope the Sirolimus is part of the reason things are going so well, because that would mean a medication he’s allowed to use is finally making a difference. I really do want to see more medical research for marijuana, especially given how much it helped Alex (and it still could reduce his need for other dangerous medications), but seeing my baby do better is far more important than anything else.