This scare tactic is pissing me off a lot. Prop 19 is way too important to let idiots with pretty lies and a hidden agenda foul it up. Continue reading “Prop 19 is about freedom, not nurses getting high and killing us all”
Month: October 2010
Our home is no longer Alex’s
This is mostly just me whining tonight. No agenda, no real updates to speak of. Alex’s situation is more or less the same as it’s been for a while now, and I’m mostly just waiting to see how prop 19 does before I’ll have much else to say about the bigger picture. Continue reading “Our home is no longer Alex’s”
The new medication
Last Monday, Alex started on Rapamune finally. It’s a wonderful but horrible medication for Alex. In terms of risks and side-effects, it scares the hell out of me, but for Alex’s situation (TSC and autism), it’s one of the few pharmaceuticals that can do some amazing good for the kid. We’ve been wanting to try it a while, and the growth in his brain is enough to justify it finally — either we try this medication or we get started down the road of brain surgery. Continue reading “The new medication”