Comments on: What’s the problem? Why can’t Alex just come home so we can figure this out? https://alexneedshelp.com/whats-the-problem-why-cant-alex-just-come-home Autism, rage, marijuana, and heartbreak Thu, 05 Jul 2018 21:56:31 +0000 hourly 1 https://wordpress.org/?v=4.9.6 By: Allison https://alexneedshelp.com/whats-the-problem-why-cant-alex-just-come-home/comment-page-1#comment-15543 Tue, 21 Jan 2014 04:54:38 +0000 http://www.alexneedshelp.com/?p=734#comment-15543 I just wanted to leave a comment with encouragement. First off I have a younger brother, Eddie who has autism and up until he was 12 he lived with us. He also has rage, but instead of SIB he lashes out on the people around him, mainly those closest to him. It got to the point where he could take down my 6’4 father with little effort and it was a daily event. It put nothing but stress on everyone and even when he was in a good mood my family was just so stressed we fought anyhow. When we announced to my family he was going to move into a group home we got mixed reactions. What was worse was the reactions from people who didn’t understand the situation and thought we didn’t love or care for him. So I know on some level how you feel about the whole thing. I miss waking up and Eddie being there watching his cartoons or being there to talking with (even though he has limited speech abilities). Even though he’s 20 almost 21 now it still gets to me now and then that he’s moved out, even though I see him multiple times a week. Its hard and many people don’t understand, which is extremely frustrating and sadly some just never will.

The other thing I wanted to say is you’ve changed my mind on medical marijuana/cannabis in 30 minutes and I’m amazed. Whenever I hear about using this substance for medical purposes I always just think of my stoner friends who want it legal for the constant high they already always get. I’ve seen how this took over their lives and now most of them are ruining their futures. I found your site on a facebook support group where someone simply asked for opinions on cannabis for children with autism. At first I said, “hell no!” in my head, but I kept reading. Upon reading your website was posted and I did some more research into it and found that there’s all different kinds of things that go into cannabis and it can be used for better things than just what my friends use it for. I know if something like this worked for Eddie I would back him 100% on it. Even if it helped a little. Thank you for opening my eyes to this. I’m currently a senior in college studying special education for moderate to intensive needs students and I feel I need to read more stuff like this or more about things I don’t understand fully to be a successful part of my students lives. So I thank you for that. I back you up 100% and wish you and your family all the best!

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By: paul https://alexneedshelp.com/whats-the-problem-why-cant-alex-just-come-home/comment-page-1#comment-11234 Wed, 11 Sep 2013 23:09:23 +0000 http://www.alexneedshelp.com/?p=734#comment-11234 any amount thru vapor would be fine google strains and they say what they do but they all seem to do the same thing as long as they are not just bad weed. the lethal amount of weed for an adult is 1500 Lbs in 15 mins to be deadly so im not sure if i has to fall on you (only way i can see it kill you) or if you explode from inhaling that much smoke? repeat every 2-4 hrs or as needed the food stuff is hard to get a good read on because it can very and you have to take what you eat with vapor you can stop when you are a negative creep (normal)

also if you grew your own (seeds from nirvanashop(dot)com) you could be sure it was chemical free and you could make salads with the fan leaves if he eats salad (ranch for the win).

get a single use pipe called one hitter to see how much to use in the vaporizer

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By: Allie https://alexneedshelp.com/whats-the-problem-why-cant-alex-just-come-home/comment-page-1#comment-3800 Sat, 23 Feb 2013 22:13:30 +0000 http://www.alexneedshelp.com/?p=734#comment-3800 You don’t have to explain to the world how your world is, and there are few that get it until they walk in your shoes. My son has self injurious behaviors much like your Alex’s behaviors. The lack of sleep, the refusal to eat, etc.. People have had many ask if I have a job ( outside of the home). It shocks me, they would consider I could work but then they do not know the day in and day out of this. If you had Alex at home you would need to have 24/7 staff, maybe two at one time on rough days. But you cannot do it without help! I am sure your tired of the endless ideas of things to do or try. Because my son is so much like your Alex, the wrapping in blankets. My ASD son also has mitochondria issues, easily treated with a vitamin cocktail ( the B complex vitamins helped him a lot too) Methylation problems, and maybe PANDAS – which relates to Strep that gets in the brain. These are some ideas of things to test for if its possible, as it may also shed some more light on the SIBS/Rages. Best to you and your family. Praying for Peace for Alex.

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By: Percy Paros https://alexneedshelp.com/whats-the-problem-why-cant-alex-just-come-home/comment-page-1#comment-3783 Thu, 21 Feb 2013 22:57:33 +0000 http://www.alexneedshelp.com/?p=734#comment-3783 I would like to know how to do this. Did you buy or make your tincture. Did you make your own tea bags? Did you use dried or fresh leaves? Did you use more than leaves? What species did you use?

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By: Shanthi Gordin https://alexneedshelp.com/whats-the-problem-why-cant-alex-just-come-home/comment-page-1#comment-3761 Wed, 20 Feb 2013 18:55:33 +0000 http://www.alexneedshelp.com/?p=734#comment-3761 i just want to reiterate my support for you all. it’s easy for those who’ve only been exposed to healthy children to judge. (when seeking medication from a local dr to help my child calm down, he actually said: ‘we all make choices…’ and wouldn’t prescribe anything more than an ineffectual sleeping pill. i can’t imagine what ‘choice’ he was referring to, but clearly he was judging more than helping. luckily it was evident to Doernbechers the necessity for prescribing PRNs.) unfortunately, we live in a state where budgetary concerns are more important than providing support to families with disabled children, which leaves us in an all or nothing solution to caring for out loved ones.

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By: MedParent https://alexneedshelp.com/whats-the-problem-why-cant-alex-just-come-home/comment-page-1#comment-3760 Wed, 20 Feb 2013 18:43:11 +0000 http://www.alexneedshelp.com/?p=734#comment-3760 We started with edibles, but they were a lot of hassle for a daily medication. We found that a homemade tincture was the best delivery system. It is dosed in hot water, so the alcohol is instantly evaporated out. Then we brew a teabag, add sugar or honey, and lime, serve over ice. It took a few tries to get the strength of the tincture just right, but once it is made, we have a two month supply of daily medication.

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By: Janice https://alexneedshelp.com/whats-the-problem-why-cant-alex-just-come-home/comment-page-1#comment-2869 Fri, 25 Jan 2013 23:00:34 +0000 http://www.alexneedshelp.com/?p=734#comment-2869 I have absolutely no ideas to offer. I just wanted to tell you that your son and family are in my prayers. When I look at the pictures at the top of the website of Alex smiling and the other crying I just cry too. He’s a beautiful little boy that is suffering. You and your wife are suffering right along with him. You are trying everything in your power just to get some relief for your son. I commend you for that. I’m sure he has to be in the facility not only for the safety of you and the other children but for Alex. When he’s hitting himself or hitting his head against the wall or floor he needs to be restrained to keep from really hurting himself in a structured environment. Something that is practically impossible to do in a family home. And last but not least thank you for being the parents Alex needs. I see you doing what’s right for him, not just what’s right for youself.

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By: monte letourneau https://alexneedshelp.com/whats-the-problem-why-cant-alex-just-come-home/comment-page-1#comment-2711 Mon, 14 Jan 2013 05:30:21 +0000 http://www.alexneedshelp.com/?p=734#comment-2711 I simply have not lived a life that could have put me in your situation, so it is “easy” to say, and feel, that I would have responded differently.

Obviously, however, if I were in exactly the same situation I would not be me, and my feelings would not be relevant, I would do the exact same thing if I were the same exact you. If I were put in your situation, I might try a few things you did not, but I have occasionally had third hand access to a growing room in the past too, and know far more about medical marijuana, brains, and minds, than most people who do not NEED to.

“wondering how we could be so selfish as to let Alex pay for our shortcomings.”

Everyone lets everyone else pay for their shortcomings. The only ones who deserve any censure or blame are those who know but don’t care.

(Vaporizing would be faster acting, but would require distinct cooperation – if you had the money to fill the room with vapor all the time you would not be having such problems. Maybe by putting it in balloons to make it more fun for him???… I think I heard some newer versions of vaporizers have a fan or other way of pushing with air pressure. Personally, and I am not alone in this, I find vapor ineffective. It is often described as more of a mind high without the body buzz. I feel similar, but opposite, results from smoking what is left after vaporization. Neither makes me feel the pleasure/happiness of being really high. This understanding runs counter to my long held belief that I prefer the more cerebral high.)

Using a vaporizer, and also feeding the un-vaporized results, at separate times, would also be a good start on looking at the THC VS other cannabinoids, if Marinol were not available.

I think the guy who recommended oil is spot on. Oil can also be absorbed through the skin, or, preferably, mucous membranes. Experimenting with placing it on his temples, carotid, in nose, et cetera, may well offer the best possible solution. This would not be as fast acting as vapor or smoke but would act faster than eating. More importantly, you could keep him at a fairly constant dose, and would need very little cooperation.

Efficacy of either the vapor or oil strategy, of course, depends a lot on which cannabinoid(s) is the active principle(s).

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By: Arpaci https://alexneedshelp.com/whats-the-problem-why-cant-alex-just-come-home/comment-page-1#comment-1281 Mon, 04 Jun 2012 07:38:39 +0000 http://www.alexneedshelp.com/?p=734#comment-1281 Hi Maybe Vaporizing would help immediatly. M.Emin Arpaci

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By: K Oakley https://alexneedshelp.com/whats-the-problem-why-cant-alex-just-come-home/comment-page-1#comment-1152 Sat, 31 Mar 2012 12:53:45 +0000 http://www.alexneedshelp.com/?p=734#comment-1152 The best strains for this type of situation would be, according to research, strains that are Indica based. Or hybirds. NOT straight sativas or anything high in THC. Also look for strains that are reviewed as “clear head” avoid all strains where people report “couch lock” or “head high”. You want strains that are a body high to calm the body from all the stress and pain. Medical based cannabis. Not the kind stoners use to get themselves high.

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