I’d like to say first and foremost that we wanted to thank all of our supporters. in the past few months, even with very few updates from us, we have received tons of emails and Facebook messages supporting us and our cause. The responses and emails about my recent blog post, “I think I’m done”, have been extraordinary. To answer the most common concern I’ve seen: no, we’re not giving up on cannabis — we’re just not writing updates as often.
I wish I had the time and energy to reply to everybody who has commented and offered us advice. I’ll try to at least sum up where Alex is today compared to that last post in April.
Alex’s mood hasn’t really improved overall, but we have found a better level of dosage for the hash oil. By giving Alex just the tiniest amount (which multiple people suggested in direct and indirect ways), we haven’t had a repeat of those first two doses where Alex had a negative reaction. We’re back to the point where we’d say we see a minor improvement in his mood, but it’s still far from the incredible improvement we saw the first few times we gave it. We’re not seeing better results than we did with the tincture alone, so (as usual) this just feels like a frustrating guessing game. If nothing else, at least it’s a different strain with different properties, so we’re able to offer Alex a bit of variety.
And we still can’t get Alex “unwrapped” for more than a few minutes at a time, though we’ve found he likes taking baths now more than he has in a while. This is a small step forward, as (obviously) he can’t wear a wrap while also bathing.
We’re working on getting Alex into the Kennedy Krieger Institute, which is all the way across the country, but has an incredible in-patient program that has shown remarkable success on another child very similar to Alex. I’m not sure what we can reasonably expect to see, but it sounds like there is some potential for major improvements. We just got a recommendation from a doctor at OHSU, so at this point it’s more a matter of “when” than “if”, which is sort of exciting but also stressful. We’re terrified of such a long trip with Alex, but we’re convinced that we have to give it a shot. We’re also not sure how we’ll afford it, so we’ve started on a fundraiser. I’ll post a link to that once we’re sure we have everything ready and worded correctly and such. Hopefully insurance covers the bulk of the expenses, but we’re not sure how we’ll afford the basics like traveling out and back, and a visit or two during his multiple-month stay.
In general cannabis news, the U.S. now has twenty states (40%) with some kind of medical marijuana law. The Illinois law is the most recent, and unfairly restrictive (no help for children, even if they have a terminal illness), but it’s a step forward all the same.
Uruguay is about to become the first nation to legalize and regulate cannabis (assuming the senate vote turns out as expected). This would be a huge move, totally unprecedented as far as I know, and you can bet I’m eager to see this happen.
And, of course, the legalization in Colorado and Washington has, so far, not ended the world or brought on the apocalypse just yet. In fact, I have yet to hear about the many fatalities due to the previously claimed huge rise in “stoned driving” incidences. Or surgeons coming to work stoned. Or people no longer being able to hold down a job. Or the “gateway” effect destroying everybody’s lives.
Maybe with all this good news, we can finally start doing REAL research and figure out why some forms of cannabis are so beneficial to certain people.