Comments on: Marijuana, autism, and failure: a true story

By: Overwhelmed

Overwhelmed — Sat, 25 Jul 2015 16:35:35 +0000

My son has similar issues and I am at the end of my rope!! My son is 16 & lives in isolation because of his social anxiety. He's been on so many different medicines and seen so many different doctors, it's exhausting. I will do nearly anything to help him. Any insight or guidance on where to begin would be appreciated!!!

By: Telina

Telina — Fri, 26 Sep 2014 09:03:48 +0000

God bless your family for trying so hard to help your precious child. I can’t imagine the pain, the hopelessness and frustration you must feel on a daily basis. What is most disturbing to me is that we have all these charity groups, all these protection and advocacy groups, and all these state, federal and county agencies that are supposed to be “helping” the disabled and yet we see, time and time again, they are doing NOTHING to help families such as yourselves. WHERE are the services and supports you child needs so he can remain at home? What is the point of all these state WAIVERS that receive federal funding to “help” the developmentally disabled? Obviously, this is a major scam that the media has yet to investigate. WHY is it that so many families with severely disabled children, children that are clobbering themselves daily, who are suffering with medical issues, are NOT getting the services and supports they need, yet each state is getting federal funding for “waivers” to help these very people? WHERE is the money going? WHO is in charge of monitoring these waivers? How is the money being spent? Nobody seems to know…..and meanwhile, so many families are suffering…..

By: Ramona

Ramona — Wed, 20 Aug 2014 01:59:38 +0000

Hi,my son have been diagnosed with tuberous sclerosis also,his case is not that severe as the child described here,but he does have seizures that are controlled by Tegritol and recently besides the tubers on his brain and kidney,they discovered a tumor also developed in the brain ,he have speech delay also. I can offer proofs of my son's sickness and my only hope also is cannabis oil.If anyone here can help us ,please contact me at :ramona12hornaday@gmail.com.Thank you so much .

By: Dad

Dad — Fri, 16 May 2014 23:37:11 +0000

I wish I could offer you some support. Cannabis seems to have the power to calm Alex down, but we never could figure out how to reproduce those perfect doses consistently. It didn't work for us for a long time, but you could try reaching out to local media outlets with home video. The public is still largely unaware of just how intense self injury can be in this very unknown segment of the population. It sounds like your son's is even more intense than Alex's.

You could always try cannabis illegally, but that's a huge risk, and potentially very easy for you to get caught given your son is in a group home.

I wish you the best. I wish I could offer you some useful advice.

By: Meg Gross

Meg Gross — Sat, 26 Apr 2014 15:13:06 +0000

I feel for you. My son's story is somewhat similar to yours. We have tried all the typical drugs and all have side effects. Nathan was institutionalize when he was 16 years old until he was 18. It was the hardest thing my husband I have ever had to do. Nathan is now almost 23 and in a group home closer to home. Nathan suffers from a chromosome deletion (2q37) along with autism, nonverbal, physical disabilities, developmental delays, OCD, severe anxiety..... On top of this he has severe self injurious behaviors. He went to the ER on Monday because he was gouging under his eye so bad that he was bleeding profusely and it wouldn't stop. The group home had to throw away all of his bedding because of the blood. This is just one of several trips to the ER for SIB. I am so afraid he will gouge his eye(s) out or worse. He is now starting the drug naltrexone. It breaks my heart to see him suffer every day of his life. I am from Wisconsin and a form medical marijuana has been approved but only for a rare seizure disorder. There has to be something more for Nathan to help him live some kind of quality of life. Thanks,

By: Dad

Dad — Sun, 01 Dec 2013 19:06:26 +0000

We tried raw hash, raw hash oil, and butter baked into foods. We never tried tea, because Alex didn't even eat the brownies, which were sweet. It turned out to be easier to just use raw hash and oil rather than trying to put it into anything else.

I'd suggest looking at The pediatric cannabis facebook group - you have to ask the admin for an invite, but that group has a lot more information than I have, and can probably give you better advice for how to figure out medical uses of cannabis.

By: Louisa

Louisa — Thu, 28 Nov 2013 17:36:43 +0000

Thanks for sharing! I am glad that at least there is a hope for us who have an autism member in our family. I also have a little brother, he is 13th now. He couldnt speak or communicate with us by verbal, but he could understand us somehow. But he is always laughing without any reasons and super active too. Unfortunately we lives in Indonesia, which is illegal to own marijuana or even there is no medical marijuana yet in here. I really want to apply him medical marijuana as well but still didnt know how to do that. I am planning to fly somewhere to Cambodia because i heard there is "legal" somehow over there or even Europe. I am planning to buy the seeds as well so i could plant it by my own. But how to give it as a plant to my brother anyway? Instead of brownies, do you also make a tea or anything else? Thanks for your attention anyway!

By: Shawn

Shawn — Sat, 17 Aug 2013 02:07:00 +0000

For those that have kids on the spectrum - kids that only sleep 4 hours a day - try over the counter medicine called Melatonin.

It worked for my son. He started sleeping normally. One piece of the puzzle!

Shawn

By: What if Rick Simpson’s Claims are True? | DeniZen Ape

What if Rick Simpson’s Claims are True? | DeniZen Ape — Mon, 03 Jun 2013 23:41:37 +0000

[...] Anecdotal report on Cannabis oil and Autism. [...]

By: Dad

Dad — Sat, 16 Mar 2013 00:29:44 +0000

I can't help you directly, but I'm certain there are others in London in similar situations. I have no idea how you'd find the right people, but I'd suggest starting with people you trust. It surprised me when I started talking about Alex just how many people I knew who had access to at least small amounts of cannabis.